Having Elena home was mostly great. The first night home was our first night without monitors, and I was so nervous she’d stop breathing Jason and I took shifts to watch her (Jason, for the record, was not nervous, but we did stay up to give me peace of mind). During feedings she tended to be “sleepy” and I had to pinch her a couple of times to make sure she was okay. I asked her pediatrician if I was overreacting, and he said ABSOLUTELY NOT. We thought Elena was a good baby, as she hardly ever cried. She was so tiny in her big huge crib, and her preemie clothes—it was hard to imagine she would ever grow out of anything.
The worst thing about her coming home was I only had a week left of my maternity leave. I fought hard for extra time, and they gave me 2 more weeks. I was pretty angry about it. Since she had come early, we hadn’t gotten daycare figured out, and she was on my insurance, and I had planned on keeping my job. We got The Grandparents to fill in after I went back to work, and eventually we got a spot in a daycare we liked.
Recent Doodle Updates
Next up: School recaps. Holiday prep, maybe. Recaps on some events.
Overall things are going well here.
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Mission Statement
No one plans, or expects, to have a child with a disability. When this happened to us, we started a desperate search to find information relating to milestones or expectations for our daughter after her diagnosis. Most of this was fruitless. My hope is for this site to help any person or parent in a situation similar to ours.
About Me
- Amy
- I'm a work-hard, play-hard multitasking wife and mother of two. I'm lucky to have a supportive family and friends, and live in a great town for children with (and without) disabililties. Elena is my firstborn, born at 33w with moderate spastic diplegia. Vivian is my secondborn--almost at 28w, but with a lot of help, made it to 38 1/2w and developing normally; she was diagnosed with focal epilepsy at age 9.
Email Me
cpmom2009 AT yahoo DOT com
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