During her 4th hospital week, she was transferred to the Transitional Nursery—still technically part of the NICU, but basically a place for babies to bulk up and get ready to come home. We learned to give Elena a bath, and started her bottle feeding, with little success. Elena did not have much strength to suck. This did improve, and eventually she could breastfeed, but poorly. Putting weight on seemed to take forever, and she’d still have apnea and bradycardias. We had to wait 9 days without any As and Bs before we could go home, and she had to weigh close to 5 lbs.
2 days before she was ready to come home, she had an “episode”. I can’t really remember if it was an A or B, but I definitely remember the nurse not thinking it was anything, and me thinking “PLEASE don’t send her home if she’s not ready!”. I was extremely nervous about the homecoming. Jason was ecstatic.
Recent Doodle Updates
Next up: School recaps. Holiday prep, maybe. Recaps on some events.
Overall things are going well here.
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Mission Statement
No one plans, or expects, to have a child with a disability. When this happened to us, we started a desperate search to find information relating to milestones or expectations for our daughter after her diagnosis. Most of this was fruitless. My hope is for this site to help any person or parent in a situation similar to ours.
About Me
- Amy
- I'm a work-hard, play-hard multitasking wife and mother of two. I'm lucky to have a supportive family and friends, and live in a great town for children with (and without) disabililties. Elena is my firstborn, born at 33w with moderate spastic diplegia. Vivian is my secondborn--almost at 28w, but with a lot of help, made it to 38 1/2w and developing normally; she was diagnosed with focal epilepsy at age 9.
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cpmom2009 AT yahoo DOT com
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