We checked in with Dr. Elias for our 9 month post-op. They looked at her flexibility, strength, how she's moving around now.
Everyone thought she looked great. They didn't really have her do much...she walked 5 paces to a step (a big one), which she got up on, and then onto a table. She sat on it, and she raised her right knee, and then her left knee. They asked her to raise both arms, and wring both hands. And that was it. I'm not sure what they are looking for...but if they want a good sense of how she moves...they should just check this blog.
Showing posts with label neurosurgery. Show all posts
Showing posts with label neurosurgery. Show all posts
Thursday, November 19, 2009
Wednesday, July 15, 2009
Neurosurgery Follow-up #2
Last week E had her second post-SDR follow up.
I have to say, I'm disappointed with the visit. Overall I feel like Elena is doing fantastically--Dr. Elias echoed that sentiment, but he really didn't examine her much. I thought he'd be pretty interested in her range of motion, how much lower her heels are, her ability to squat (some), or how much LESS tight her legs are--but maybe he got all the information he needed by watching her move a little. She walked across the room, independently, a couple paces at a time (nowhere near her best effort, as it was past lunchtime, and she was out of her shoe). She sat on a bench, and crossed one leg over the other (with her shoes on), each side. He asked if she was having any problems toileting, which she does not. He was very pleased.
He did say that I should expect her to improve a lot more. I had the impression that the majority of the changes come in the first 6 months after SDR; he said "double that" and then some. I'm pretty excited about that!
The PT there also examined her, and took a video of her walking. We waited a long time just for her to do that. I could have directed her to this blog--better videos, and we wouldn't have had to wait so long. Hmph.
I have to say, I'm disappointed with the visit. Overall I feel like Elena is doing fantastically--Dr. Elias echoed that sentiment, but he really didn't examine her much. I thought he'd be pretty interested in her range of motion, how much lower her heels are, her ability to squat (some), or how much LESS tight her legs are--but maybe he got all the information he needed by watching her move a little. She walked across the room, independently, a couple paces at a time (nowhere near her best effort, as it was past lunchtime, and she was out of her shoe). She sat on a bench, and crossed one leg over the other (with her shoes on), each side. He asked if she was having any problems toileting, which she does not. He was very pleased.
He did say that I should expect her to improve a lot more. I had the impression that the majority of the changes come in the first 6 months after SDR; he said "double that" and then some. I'm pretty excited about that!
The PT there also examined her, and took a video of her walking. We waited a long time just for her to do that. I could have directed her to this blog--better videos, and we wouldn't have had to wait so long. Hmph.
Labels:
cerebral palsy,
neurosurgery,
SDR,
selective dorsal rhizotomy,
walking
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