Sunday, April 18, 2010

Next Up: Surgery, most likely PERCS

I am pretty sure E needs tendon lengthening. She has a very hard time standing fully upright; I think she could do so more easily if she had her contractures surgically lengthened.

I've been thinking about this for a long while, and I think PERCS (Selective Percutaneous Myofascial Lengthening) is the way to go. Our orthopaedic agrees, which sort of surprised me...I thought he'd want to go the traditional lengthening route. Now I need to find the time and doctor. I am pursuing Roy Nuzzo in NJ.

6 comments:

Cris and Liza said...

I look forward to following your progress with this! I think Shay will need something similar. We just got hip x rays back today that look good - still has major turning in of foot - so must be muscle...i agree with you - percs sounds so much less invasive than traditional lengthening...look forward to following the journey...

Anonymous said...

I HAVE BEEN TRYING TO FIND INFO ON THIS SIINCE WHEN I WAS YOUNGER I HAD MY HEEL CORDS DONE, BUT I LIKE THE FACT THAT IT IS NOT AS INVASIVE.. I DID FINE SOMETHING THAT SAID IT WOULD BENIFIT KIDS AND ADULTS AND I WAS BE INTERESTED IN ANY INFO I CAN GET
MWLISSA

Kat said...

Melissa,

I'm from Europe, have spastic diplegia and had heel cord lengthening when I was 5 y/o.

Five years ago I got in touch with Dr. Nuzzo and he replied that I would benefit from PERCS (both hamstrings and gastrocs). At the time I didn't go with the surgery but now I'm reconsidering it.

I have been searching high and low to find any adult who had this procedure done but with no success so far...

Amy, I'll cross all crossables that this surgery works out for Elena!!!

Please keep us updated.

Kat

Anonymous said...

I HAVE SPASIC DIPELGIA AND I FEEL THAT SHIS SURGURY WOUOLD BENIFIT ME DOES ANYONE HAVE ANY INFORMATION ON IT???

PLEASE REPLY AS I WOULD LIKE TO FOLLOW THIS UP

THANKYOU

wendy said...

My son is 5 and he is a toe walker and now his feet are starting to deform. He is going to have this procedure done on Sept. 24th by Dr. Yngve. We saw him at UTMB in Galveston Texas. The Dr. said they have had a lot of success with PERCS.

nick said...

wendy could you please let me know how your son got on with surgery my daughter angel is 9 years old and has c p she has been having botox injection for 6 years but are now not helping her conditioni have been advised we need to consider surgery(tendon lengthening by way of z cut method)i have recently been made aware of percs and would welcome any advice or help
nick
europe